Websites and blogs relating to renal cell carcinoma – for the larger generic cancer sites I have provided direct links to the kidney cancer sections.
Cancer Research UK – probably the best factual information but also the scariest as it lists stats!
Macmillan – good, user-friendly ‘initial diagnosis’ info. The blogs and forums section of the website can be a bit exasperating. It’s such a big site it can be difficult to find relevant facts. http://www.macmillan.org.uk/Cancerinformation/Cancertypes/Kidney/Kidneycancer.aspx
James Whale Fund for Kidney Cancer – a specific kidney cancer charity with a focus on campaigning. There is a good booklet you can download on initial diagnosis.
Kidney Cancer Support Network
A UK patient-led website run by kidney cancer patients and carers for the benefit of other patients, carers and their families.
The Wrighty Way– Sally Hewitt’s brilliant blog about her partner Steve Wright’s experience of Stage 4 kidney cancer has been so helpful to me. Concise and humorous it is the best UK rcc blog I have come across.
Update: Sally Hewitt became Sally Wright on October 14th 2010. Sadly Steve Wright died less than a month later, on November 10th 2010.
A journey of another kind…
This is the extraordinary blog of Jane Thomson, a 51-year-old from Birmingham, who died in May 2010 three years after initial diagnosis. She is an excellent writer, witty, insightful and searingly honest. She was the focal point for the James Whale documentary Jane’s Journey (links below). WARNING: Her account of her final months, sometimes supplemented by her husband Martin, is emotionally harrowing.
Martin has recently published his own blog Life After Jane.
Kidney Cancer Canada – an excellent resource
Kidney Cancer Association – the main American resource.